ResponseResponseResponseRegular short breaks from caring to enable you to do regular activities e.g. shopping, meeting friends or leisure activitiesBreaks which enable you to relax in your own homeBreaks which allow you meet other carers, access support either with or without the person you care forA weekend breakRespite breaks such as a week / fortnight / month enabling you to go away or remain at home but have respite from your caring roleBreaks with the person you care for such as holidays together, with (or without) help and support with caring specific tasksResponseRegular short breaks from caring to enable you to do regular activities e.g. shopping, meeting friends or leisure activitiesBreaks which enable you to relax in your own homeBreaks which allow you to meet other carers, access support either with or without the person you care forA weekend breakRespite breaks such as a week / fortnight / month enabling you to go away or remain at home but have respite from your caring roleBreaks with the person you care for such as holidays together, with (or without) help and support with caring specific tasksOne off breaks e.g. enabling you to attend hospital appointments etcSomeone just to pop in to ensure the person I care for is ok, peace of mind whilst I am outSitting service: e.g., someone to come and stay with the person you care for enabling you to go out or relax at homeCare at home: e.g., someone to come into the home to provide care including personal careDay care where the person you care for goes to a club or activityLive in careRespite care where the person you care for goes elsewhere to be looked after e.g., care home, someone else’s homeFamily Break - Opportunity to go away with family and the cared forSomeone to live at home that can provide up to 10 hours support a week (this option is called Homeshare York)ResponseResponseThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityComplexities around caring for more than one personNo-one to go away with if person I care for is being cared for elsewhereUnable to plan ahead due to circumstances of caring roleOther commitments preventingLocation of services not suitableFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareResponseResponseResponseResponseResponseResponseResponse 118391420797YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessNoYes I would like to access ad hocNoYes I would like regular accessYes I would like to access ad hoc 118391420329YesBothChildNeverNeverNeverNeverNeverNeverNo 118391381519YesChildChildNeverNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowWould definitely use nowYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391370005YesBothChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingWould definitely use nowWould definitely use nowWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Would help me keep going in my caring roleWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391357079YesChildN/ASometimesNeverNeverSometimesNeverSometimesYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould definitely use nowMight consider using in the futureYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityUnable to plan ahead due to circumstances of caring roleOther commitments preventingFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNoYes, continue to this sectionUnder 50FemaleYesGay or lesbianWhite - English / Welsh / Scottish / Northern Irish / British 118391347656YesChildChildSometimesNeverNeverNeverNeverSometimesYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocWould definitely use nowWould definitely use nowWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Not enough availabilityComplexities around caring for more than one personWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391344277YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould not feel comfortable usingMight consider using in the futureMight consider using in the futureWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Don’t know how to organise/ where to get helpNot enough availabilityNo-one to go away with if person I care for is being cared for elsewhereFeeling too guilty, or would worry too muchWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoNo, skip this section 118391338364YesChildN/ANeverNeverSometimesSometimesNeverSometimesYesYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoYes I would like to access ad hocYes I would like to access ad hocMight consider using in the futureWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Complexities around caring for more than one personWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareYesYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391334704YesChildChildSometimesSometimesNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowMight consider using in the futureWould definitely use nowWould definitely use nowWould definitely use nowYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesDon’t know how to organise/ where to get helpUnable to plan ahead due to circumstances of caring roleI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesBisexualWhite - English / Welsh / Scottish / Northern Irish / British 118391290063YesChildN/ASometimesSometimesNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesDon’t know how to organise/ where to get helpNot enough availabilityUnable to plan ahead due to circumstances of caring roleOther commitments preventingFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoNo, skip this section 118391186279YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould definitely use nowMight consider using in the futureNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391171838YesChildN/ANeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessNoYes I would like regular accessYes I would like regular accessNoWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowMight consider using in the futureNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfYesYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391161549Yes 118391152191YesAdultAdultSometimesNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsUnable to plan ahead due to circumstances of caring roleFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59MaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391148684YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowWould definitely use nowWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesDon’t know how to organise/ where to get helpComplexities around caring for more than one personFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50MaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118391141922YesChildChildRegularlyRegularlyNeverSometimesNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Person I care for has needs which are too complex, are too difficult to find placesDon’t know how to organise/ where to get helpNot enough availabilityLocation of services not suitableFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoNo, skip this section 118391130507YesChildChildSometimesNeverSometimesNeverNeverSometimesYesNoYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessWould not feel comfortable usingWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingWould definitely use nowWould definitely use nowMight consider using in the futureYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Person I care for has needs which are too complex, are too difficult to find placesNot enough availabilityWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould prevent me from burning out and needing care myselfWould enable me to look after someone else e.g., childcareNoNo, skip this section 118391129161Yes 118390984970YesChildN/ANeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocNoYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingWould definitely use nowMight consider using in the futureWould definitely use nowMight consider using in the futureWould not feel comfortable usingWould definitely use nowMight consider using in the futureYesYesToo hard to organise (eg complex systems, given up trying)Don’t know how to organise/ where to get helpNot enough availabilityFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390980794YesAdultAdultNeverNeverSometimesNeverYesYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNot enough availabilityComplexities around caring for more than one personNo-one to go away with if person I care for is being cared for elsewhereUnable to plan ahead due to circumstances of caring roleI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390975777YesChildChildRegularlySometimesSometimesSometimesNeverSometimesYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocMight consider using in the futureMight consider using in the futureWould definitely use nowWould definitely use nowMight consider using in the futureWould definitely use nowWould definitely use nowWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesNot enough availabilityFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoNo, skip this section 118390954548YesBothChildNeverNeverNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hoc 118390948182Yes 118390943293Yes 118390930070YesChildChildNeverNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like to access ad hocNoYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessNoWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould definitely use nowWould not feel comfortable usingNoYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityComplexities around caring for more than one personFeeling too guilty, or would worry too muchWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390927908YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoMight consider using in the futureMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesNoThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390928070YesChildChildNeverNeverNeverNeverNeverSometimesYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocMight consider using in the futureWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould definitely use nowWould not feel comfortable usingYesNoThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Not enough availabilityWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoNo, skip this section 118390922938YesChildNeverSometimesNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessNoYes I would like regular accessWould not feel comfortable usingMight consider using in the futureMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowMight consider using in the futureYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsOther commitments preventingI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNo, skip this section 118390920190YesChildNeverNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNo-one to go away with if person I care for is being cared for elsewhereOther commitments preventingFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390916797YesChildChildSometimesNeverSometimesNeverNeverNeverYes 118390902421YesChildN/ANeverNeverNeverNeverNeverSometimesNoWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesWould help me keep going in my caring roleWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this sectionUnder 50FemaleYesPrefer not to sayWhite - English / Welsh / Scottish / Northern Irish / British 118390901477Yes 118390891792YesChildN/ARegularlySometimesSometimesNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould definitely use nowNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Not enough availabilityWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390874727Yes 118390816122YesChildChildNeverNeverNeverNeverNeverNeverYes 118390627201YesChildN/ANeverNeverNeverNeverNeverSometimesYesYes I would like to access ad hocNoNoNoNoYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpComplexities around caring for more than one personFeeling too guilty, or would worry too muchWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390607291Yes 118390594755YesAdultAdultNeverNeverNeverNeverNeverNeverYesYes I would like to access ad hocNoNoNoNoYes I would like to access ad hocYes I would like to access ad hocMight consider using in the futureMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingNoYesWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section70-79FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390582029YesBothChildSometimesSometimesSometimesNeverNeverSometimesYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureMight consider using in the futureWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsComplexities around caring for more than one personWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390565997YesAdultN/ANeverNeverSometimesNeverNeverSometimesYesYes I would like regular accessNoYes I would like to access ad hocYes I would like to access ad hocNoYes I would like to access ad hocYes I would like to access ad hocMight consider using in the futureWould definitely use nowWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureYesYesToo hard to organise (eg complex systems, given up trying)Don’t know how to organise/ where to get helpFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118390280446YesAdultN/ARegularlyRegularlyNeverSometimesNeverNeverYesNoNoYes I would like to access ad hocNoYes I would like to access ad hocYes I would like regular accessNoMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowMight consider using in the futureYesNoThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould help me to manage my mental health/stress and emotionsNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118389746877YesAdultAdultRegularlySometimesNeverNeverNeverRegularlyNo 118389646921YesAdult 118389365397YesAdultN/ANeverNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould definitely use nowMight consider using in the futureWould not feel comfortable usingYesYesNot enough availabilityWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section60-69FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118388807102YesAdultAdultSometimesNeverNeverNeverNeverSometimesYesNoYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocNoWould not feel comfortable usingWould definitely use nowWould definitely use nowWould definitely use nowMight consider using in the futureMight consider using in the futureWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section60-69FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118388785420YesAdultAdultSometimesSometimesNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessNoNoNoNoYes I would like to access ad hocMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould not feel comfortable usingYesYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoNo, skip this section 118388780997Yes 118388747547YesAdultAdultRegularlyRegularlySometimesNeverSometimesSometimesYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessWould not feel comfortable usingWould definitely use nowMight consider using in the futureNoYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsComplexities around caring for more than one personWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoNo, skip this section 118388736685YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsUnable to plan ahead due to circumstances of caring roleOther commitments preventingFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118386987382YesAdultAdultNeverNeverRegularlyNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowWould definitely use nowWould definitely use nowWould definitely use nowYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNot enough availabilityComplexities around caring for more than one personNo-one to go away with if person I care for is being cared for elsewhereFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section70-79FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118386985947YesAdultAdultRegularlySometimesSometimesNeverNeverNoNoNoOther commitments preventingWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section50-59FemaleYesPrefer not to sayWhite - English / Welsh / Scottish / Northern Irish / British 118386984507YesBothAdultNeverNeverSometimesNeverNeverYesYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureNoYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsI do not trust other services to care for the person I look afterWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentYesYes, continue to this section70-79MaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118386982808YesAdultN/ANeverNeverNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoNoYes I would like regular accessMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingMight consider using in the futureYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesDon’t know how to organise/ where to get helpNot enough availabilityNo-one to go away with if person I care for is being cared for elsewhereUnable to plan ahead due to circumstances of caring roleOther commitments preventingLocation of services not suitableFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section70-79FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118386981014YesAdultAdultSometimesSometimesSometimesSometimesSometimesNeverYesNoYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocWould definitely use nowYesYesWould help me keep going in my caring roleNoYes, continue to this section70-79FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118386978859YesAdultSometimesSometimesNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like regular accessWould definitely use nowWould definitely use nowMight consider using in the futureWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureYesYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsUnable to plan ahead due to circumstances of caring roleWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould prevent me from burning out and needing care myselfNoYes, continue to this section70-79FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118386977022YesAdultAdultRegularlyRegularlyRegularlySometimesSometimesNeverNoWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingNoNoNoYes, continue to this section70-79FemaleYesBisexualWhite - English / Welsh / Scottish / Northern Irish / British 118386973071YesAdultN/ANeverNeverSometimesNeverNeverNeverYesYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocNoYes I would like regular accessNoYes I would like regular accessWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Too hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNo-one to go away with if person I care for is being cared for elsewhereFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentWould enable me to look after someone else e.g., childcareNoYes, continue to this section60-69FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118385922444YesAdultAdultSometimesSometimesNeverSometimesNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNot enough availabilityUnable to plan ahead due to circumstances of caring roleOther commitments preventingFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoNo, skip this section 118385658851Yes 118385624761Yes 118385569575YesAdultNeverNeverSometimesNeverYes 118385479965Yes 118385406145YesChildChildSometimesNeverNeverNeverNeverNeverYesNoYes I would like to access ad hocYes I would like to access ad hocNoNoYes I would like regular accessYes I would like to access ad hocWould not feel comfortable usingWould definitely use nowMight consider using in the futureMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowMight consider using in the futureYesYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpWould enable me to work or undertake training or educationNoYes, continue to this sectionUnder 50FemaleYesBisexualWhite - English / Welsh / Scottish / Northern Irish / British 118385333889YesChildChildSometimesNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingYesYesDon’t know how to organise/ where to get helpFeeling too guilty, or would worry too muchWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to look after someone else e.g., childcareNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118385308025YesAdultAdultNeverNeverSometimesSometimesSometimesSometimesYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfYesYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118385306265YesChildChildSometimesSometimesSometimesSometimesSometimesSometimesYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessWould not feel comfortable usingWould definitely use nowMight consider using in the futureWould definitely use nowWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureYesYesDon’t know how to organise/ where to get helpWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118385305053YesAdultAdultRegularlyNeverNeverNeverNeverSometimesYesNoYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocWould definitely use nowWould definitely use nowWould definitely use nowMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould definitely use nowMight consider using in the futureNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Would enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould prevent me from burning out and needing care myselfNoYes, continue to this section70-79FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118384598557YesBothChildSometimesNeverNeverNeverNeverNeverYes 118384041982YesAdultN/ANeverNeverNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoYes I would like to access ad hocMight consider using in the futureWould definitely use nowMight consider using in the futureNoYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpUnable to plan ahead due to circumstances of caring roleWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118382936848YesAdultRegularlyRegularlySometimesRegularlyRegularlyRegularlyNoMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingNoNoPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsComplexities around caring for more than one personWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to look after someone else e.g., childcareNoYes, continue to this section60-69FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118381931474YesAdultN/ANeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingWould definitely use nowMight consider using in the futureMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNot enough availabilityComplexities around caring for more than one personUnable to plan ahead due to circumstances of caring roleLocation of services not suitableWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59FemaleYesGay or lesbianWhite - English / Welsh / Scottish / Northern Irish / British 118376485509YesAdultAdultNeverNeverSometimesNeverNeverYes 118378668351YesAdultN/ANeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessNoNoYes I would like to access ad hocYes I would like regular accessWould not feel comfortable usingWould definitely use nowMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Too hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionPrefer not to sayFemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118378521999YesAdultN/ANeverNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like regular accessYes I would like regular accessNoNoYes I would like to access ad hocYes I would like regular access 118378444914YesAdultN/ANeverSometimesSometimesNeverNeverSometimesYesYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessNo 118377562105YesAdultN/ANeverNeverNeverNeverYesYes I would like regular accessMight consider using in the futureMight consider using in the futureYesYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfYesYes, continue to this section50-59FemaleYesBisexualWhite - English / Welsh / Scottish / Northern Irish / British 118377411592YesChildSometimesRegularlyNeverNeverNeverSometimesYesNoYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingYesYesThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpOther commitments preventingFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to work or undertake training or educationWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section50-59FemaleYesPrefer not to sayWhite - English / Welsh / Scottish / Northern Irish / British 118377333767Yes 118376927525Yes 118376790992YesAdultN/ASometimesNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like to access ad hocNoYes I would like to access ad hocNoYes I would like to access ad hocNoMight consider using in the futureMight consider using in the futureMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingNoYesToo hard to organise (eg complex systems, given up trying)Unable to plan ahead due to circumstances of caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsNoYes, continue to this sectionUnder 50FemaleYesBisexualWhite - English / Welsh / Scottish / Northern Irish / British 118376699744YesChildChildNeverNeverNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocWould not feel comfortable usingWould definitely use nowWould definitely use nowWould definitely use nowMight consider using in the futureWould definitely use nowWould definitely use nowMight consider using in the futureNoYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Too hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsComplexities around caring for more than one personUnable to plan ahead due to circumstances of caring roleFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould prevent me from burning out and needing care myselfNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118376651867YesAdultN/ARegularlySometimesNeverNeverNeverNeverYesYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like regular accessMight consider using in the futureWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingWould definitely use nowWould definitely use nowWould not feel comfortable usingYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)The cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsDon’t know how to organise/ where to get helpNot enough availabilityFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59FemaleYesHeterosexual or straightPrefer not to say 118376542919YesAdultN/ARegularlySometimesNeverNeverNeverSometimesNo 118376507925YesAdultN/ANeverNeverNeverNeverNeverNeverNo 118376491949YesAdultSometimesSometimesNeverNeverNeverNeverYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoNoNoNoMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingWould not feel comfortable usingNoNoPerson I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsUnable to plan ahead due to circumstances of caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section60-69MaleYesBisexualWhite - English / Welsh / Scottish / Northern Irish / British 118376485147YesAdultRegularlyRegularlyNeverSometimesSometimesSometimesYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould not feel comfortable usingMight consider using in the futureMight consider using in the futureWould not feel comfortable usingYesNoThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Not enough availabilityFeeling too guilty, or would worry too muchWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsNoNo, skip this section 118374561414YesChildChildNeverSometimesNeverNeverNeverSometimesYesYes I would like to access ad hocNoNoYes I would like regular accessYes I would like to access ad hocYes I would like regular accessNoMight consider using in the futureMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingMight consider using in the futureWould definitely use nowWould not feel comfortable usingNoYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsComplexities around caring for more than one personFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this sectionUnder 50MaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118372703629YesAdultAdultSometimesNeverNeverNeverNeverNeverYesYes I would like regular accessYes I would like to access ad hocNoNoWould not feel comfortable usingWould definitely use nowWould definitely use nowWould definitely use nowMight consider using in the futureWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingYesYesToo hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNot enough availabilityComplexities around caring for more than one personLocation of services not suitableWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118372607400YesChildChildSometimesSometimesNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like to access ad hocYes I would like regular accessWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowMight consider using in the futureYesYesToo hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesNot enough availabilityLocation of services not suitableWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section50-59FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118326977542Yes 118371844051YesChildNeverNeverNeverNeverNeverNeverYesYes I would like regular accessNoYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoWould not feel comfortable usingWould definitely use nowWould definitely use nowWould definitely use nowWould not feel comfortable usingWould definitely use nowWould definitely use nowMight consider using in the futureYesYesThe cost for the person I care for to be looked after by someone else (eg day care, sitting services, respite care)Too hard to organise (eg complex systems, given up trying)Don’t know how to organise/ where to get helpWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118322941189YesAdultN/ANeverNeverNeverNeverNeverNeverYesNoNoNoYes I would like regular accessYes I would like regular accessNoNoMight consider using in the futureWould definitely use nowWould not feel comfortable usingMight consider using in the futureWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingYesYesToo hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsOther commitments preventingWould help me keep going in my caring roleWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this section60-69FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118367742630YesChildN/ASometimesSometimesSometimesNeverNeverSometimesYesYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocNoYes I would like regular accessYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowWould definitely use nowMight consider using in the futureYesYesThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Too hard to organise (eg complex systems, given up trying)Person I care for has needs which are too complex, are too difficult to find placesNot enough availabilityFeeling too guilty, or would worry too muchI do not trust other services to care for the person I look afterWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsNoNo, skip this section 118367726871Yes 118365879946YesChildRegularlyRegularlySometimesNeverNeverRegularlyYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like regular accessYes I would like regular accessYes I would like to access ad hoc 118365815438Yes 118364825668YesChildN/ASometimesRegularlyNeverNeverNeverSometimesYesYes I would like regular accessYes I would like to access ad hocYes I would like regular accessNoNoYes I would like regular accessYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureMight consider using in the futureWould definitely use nowWould not feel comfortable usingWould not feel comfortable usingWould definitely use nowWould not feel comfortable usingNoYesPerson I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsWould help me keep going in my caring roleWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoNo, skip this section 118364135524YesChildChildSometimesNeverNeverSometimesSometimesSometimesYesYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowMight consider using in the futureWould definitely use nowMight consider using in the futureMight consider using in the futureYesNoToo hard to organise (eg complex systems, given up trying)Person I care for is reluctant to let anyone else care for them or doesn’t recognise they have care needsNot enough availabilityWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfNoYes, continue to this sectionUnder 50FemaleYesHeterosexual or straightWhite - English / Welsh / Scottish / Northern Irish / British 118363270692YesAdultN/ANeverNeverNeverNeverNeverSometimesYesYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like to access ad hocYes I would like regular accessYes I would like to access ad hocWould not feel comfortable usingMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureMight consider using in the futureWould definitely use nowMight consider using in the futureYesYesThe cost of the break for myself (eg can’t afford to go anywhere, even if no cost for the person I care for)Person I care for has needs which are too complex, are too difficult to find placesWould help me keep going in my caring roleWould enable me to do things that support my health and wellbeing such as leisure activities, meeting friends etcWould help me to manage my mental health/stress and emotionsWould prevent me from burning out and needing care myselfWould enable me to deal with my own health e.g. attend appointments, undergo treatmentNoYes, continue to this section50-59FemaleYesHeterosexual or straightMixed - White and Black African Mixed - White and Asian